Curing Neurofibromatosis (a tumor disorder), Help My Four Year Old Friend

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Curing Neurofibromatosis (a tumor disorder), Help My Four Year Old Friend

Posted on July 16, 2012
Curing Neurofibromatosis (a tumor disorder), Help My Four Year Old Friend

Meet my little friend Jacqueline and her big brother Billy. I love this moment I captured on film a while back because it screams delightfulness that only children can emit.

Jacqueline has a genetic tumor disorder called neurofibromatosis (also referred to as “NF”) where nerve tissue grows tumors for life and there is no cure. She has myopic glioma, tumors that grow inside the brain as well as an abnormal mass on her tongue and on the back of her head.

Imagine what it is like to be her family, dear friends of mine, who have to take her to several specialists each month.

Jacqueline is silly, funny, intelligent and has an infectious laugh. My son adores both her and her brother. They are all like siblings and we enjoy being in their presence.

I am humbly asking for your help to donate and/or share Jacqueline’s story so we can create awareness about neurofibromatosis. On July 29th join us along with the Children’s Tumor Foundation for Jacqueline’s Team Walk Away in Minneapolis to help her family raise funds to find a cure. 

One of the greatest gifts we can give is being of service. Being present for others has the power to be a healer, a teacher and a friend. If you are unable to join the event, please donate to Jacqueline’s Team Walk Away in her honor and help make a difference.

Thank you for your support. -Kakie

 

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